Today was the hardest emotional day for us. Katie's not getting worse but she's not getting better either. After last night we were so encouraged and hopeful for a speedy recovery but when we woke up this morning and her stats were the same I was so disappointed. The doctors assured me that doesn't mean she's going to have trouble recovering, it just takes a while for some babies. Even after she goes home she'll still be sick and will still need meds and nebulizer treatments for a while (maybe weeks.)They tried to start weaning her off some of the oxygen and oxygen flow today, but her stats were going down so they had to increase it all back to where they were this morning. So discouraging. Even with the pace they were trying to wean her this morning it was looking like it would be Saturday at the absolute earliest for us to take her home (to Memaw and Papaw's house.) Now that they weren't able to start weaning her I'm thinking we'll be here until at least Sunday.
Poor baby. She's on her 3rd iv! She keeps pulling them out. It's so heartwrenching to see your baby screaming in pain like that and not to be able to help them. The good thing is that she's alert and strong enough to fight like that. But it's really hard to keep her in bed. She rolls around and gets tangled in all her cords and pulls them out. She tries so hard to climb out of this hospital bed! Poor baby is really stir crazy!
I just want my baby girl back home and well. I want to sit on the floor with her and play with her. I want to hold her and rock her to sleep. She has too many cords right now so she can't get comfortable in my arms and the cords get tangled too. You can't see them all in the pictures here but besided the oxygen tubes in her nose, those tubes are connected to a big one on her back, she has wires on her chest, tubes attached to each foot, and her iv. She has 1 free hand with nothing attached and that's what she has to eat and play with. :( I want her happy little spirit back. We've gotten small glimpses of that happy little spirit here but not much. She very quickly remembers all those cords and just gets mad. I don't blame her. Anybody would hate al that stuff attached to almost every extremity of thier body!
On a brighter note...
Aunt Mindy brought her Christmas present up tonight and the LSUA police officers brought her some presents from their toy drive. That was so sweet and Katie was really happy to have some new toys to play with for a while. It was a wierd feeling to receive the toydrive gifts. We've donated gifts for things like that before but you never expect to be on the receiving end of it.
I talked to her doctor from home today. It was a relief to be able to talk to him and let him know what all has been going on. He's going to see Katie our 1st day back in town. We'll have more x-rays done at some point to follow up and see her progress. I think they'll do one before we leave here but I'm not sure about that. And we will definitely have one a month after she's released from the hospital to make sure it's all gone.So I guess we'll be spending Christmas Eve and Christmas Day in ICU. At least she's too young to know what Christmas is and when it's supposed to be. I think we'll have to call Santa and ask him to come back to Memaw and Papaw's house for a 2nd time after Katie gets out of here.
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